191975 Resource 101842 21 21 1197138700994 1197139320792 Controlled Ambivalently Proud

Seeing Rita's photo on the ARPKD web site home page stirs up mixed feelings.

<p>The other day, Carol visited the <a title="ARPKD | CHF Alliance" href="http://www.arpkdchf.org/" target="_blank">ARPKD web site</a>, as she does from time to time, and was surprised to see our Rita, looking cute as ever, right on the home page.</p><p>We had sent in a photo for use in a public service announcement, but still, it was a surprise to see her featured on the home page as the face of the PSA.</p><p>The page stirs up a mix of emotions.&nbsp; She's my daughter and I'm extremely proud of her (and of course, how could they choose anyone else for the home page &lt;g&gt;).&nbsp;&nbsp;I'm also torn up by&nbsp;the idea that she may have ARPKD (which is still not a confirmed diagnosis).&nbsp; I'm encouraged by the great progress that's being made by researchers and even more encouraged by the fact that both the University of Michigan Hospital and the NIH both openly question whether or not she has ARPKD.&nbsp; I'm saddened to see the other children in the PSA that definitely do have ARPKD.</p><p>But, most of all, I'm reminded how lucky we are.</p> 9 application/xml photo PSA Rita Improving the lives of those affected. http://www.arpkdchf.org/ PSA on You Tube http://www.youtube.com/ARPKDCHF false Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727) 127.0.0.1 127.0.0.1 aseidl 68.40.167.222 false true false false true 173251 false false true false false false true 101842 blog blogsite/Seidl/web